Shining Through: My Journey with incontinentia pigmenti is a heartwarming children’s book about an eight-year-old little girl named Miah who was born with a rare skin condition that has impacted her life. It talks about her physical symptoms and the tests she gets regularly, and it also describes her developmental delays. This condition occurs mostly in females and is lethal in males. It is passed from mother to daughter but if passed to male, the pregnancy is likely to end in a miscarriage. Her mother does not have this gene and her father cannot pass it to her. How was she born with it? There are many questions that run through her parent’s minds since her mom had an amazing pregnancy without any complications. With much research and education and many different doctors’ appointments, it has helped her parents ensure Miah is able to get the best care. Miah’s parents learn how unique she is, and they are extremely proud of her ability to stand out and very proud of who she is becoming. She demonstrates self-love, acceptance, and perseverance. Being different is not something to be ashamed of, embracing your uniqueness is powerful.
